Familial ALS Resource Booklet

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About 10 percent of people with ALS have familial ALS, or fALS, which means more than one family member is affected by the disease. The other 90 percent is sporadic. Scientists believe that most cases of fALS are due to mutations in genes. Both familial and sporadic ALS cause muscle weakness and loss of the ability to walk, speak, eat, move, and eventually breathe.

It can be overwhelming to learn that you or a family member has ALS. Receiving the diagnosis of familial ALS can raise extra questions and concerns about the future. This booklet will help answer these questions and provide information to support you and your family.

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About 10 percent of people with ALS have familial ALS, or fALS, which means more than one family member is affected by the disease. The other 90 percent is sporadic. Scientists believe that most cases of fALS are due to mutations in genes. Both familial and sporadic ALS cause muscle weakness and loss of the ability to walk, speak, eat, move, and eventually breathe.

It can be overwhelming to learn that you or a family member has ALS. Receiving the diagnosis of familial ALS can raise extra questions and concerns about the future. This booklet will help answer these questions and provide information to support you and your family.

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Weight 4 oz