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Care Services educational materials and resources available for order by the general public, The ALS Association Chapters, and non-affiliated organizations
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Showing 1–28 of 40 results
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At School: A Guide to Supporting Students Who Have Been Affected by ALS
$0.00Max Qty: 1
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Familial ALS Resource Booklet
$0.00About 10 percent of people with ALS have familial ALS, or fALS, which means more than one family member is affected by the disease. The other 90 percent is sporadic. Scientists believe that most cases of fALS are due to mutations in genes. Both familial and sporadic ALS cause muscle weakness and loss of the ability to walk, speak, eat, move, and eventually breathe.
It can be overwhelming to learn that you or a family member has ALS. Receiving the diagnosis of familial ALS can raise extra questions and concerns about the future. This booklet will help answer these questions and provide information to support you and your family.
Max Qty: 1
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Female Caregiver in Restroom
$0.00These signs indicate a caregiver of the opposite gender is assisting their loved one in a public restroom. They have a magnetic strip attached so that they may be easily affixed to the metal frame of the restroom door, alerting others as they enter.
Max Qty: 1
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File of Life Card
$0.00The File of Life is a card which contains vital personal medical information and is kept on the outside of your refrigerator in a bright red magnetic pocket, readily accessible to EMTs when they arrive on an emergency call. The medical card lists your emergency medical contacts, health problems, medications taken, allergies, recent surgeries and more. People living with ALS and their caregivers are encouraged to each have a File of Life card in case of an emergency.
The pouch size is 4 ¼” x 5 ¼”
The card size is 4 7/8” x 11 7/8”
Max Qty: 2
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Hospital Communication Sign
$0.00Max Qty: 1
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Including the Multidisciplinary Team Approach in Your Care
$0.00People living with ALS can maintain independence longer and enjoy improved quality of life when provided with options for symptom management, assistive technology, adaptive equipment, education, care services, and emotional support. The ALS Association’s certified centers and clinics follow a multidisciplinary care model that brings together a team of health and social care professionals with expertise in addressing the various and ever-changing needs of people living with ALS and their families. This booklet will provide a helpful overview of the multidisciplinary team approach, what one can expect during a typical clinic visit, as well as additional options for care and support from providers outside of the core care team.
Max Qty: 1
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Inclusión de un enfoque de equipo multidisciplinario en su plan de cuidados
$0.00Las personas que viven con ELA pueden mantener su independencia por más tiempo y disfrutar de una mejor calidad de vida si cuentan con opciones para manejar los síntomas, tecnología asistencial, equipos de adaptación, educación, servicios de cuidados y apoyo emocional. Las clínicas y los centros certificados de la ALS Association siguen un modelo multidisciplinario de atención que reúne a un equipo de profesionales especializados en la atención médica y social para responder a las distintas necesidades, que van cambiando con el tiempo, de las personas que viven con ELA y sus familias. Este manual le brindará un resumen útil del enfoque basado en un equipo multidisciplinario, le explicará lo que sucede durante una visita clínica típica, y le sugerirá opciones adicionales de atención y apoyo por parte de proveedores que están fuera del equipo principal que lo atiende.
Max Qty: 1
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Male Caregiver in Restroom
$0.00These signs indicate a caregiver of the opposite gender is assisting their loved one in a public restroom. They have a magnetic strip attached so that they may be easily affixed to the metal frame of the restroom door, alerting others as they enter.
Max Qty: 1
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Social Distancing Door Sign
$0.00Max Qty: 1
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Families and ALS: A Guide for Talking with and Supporting Children and Youths
$0.00The resource guide was created primarily for families living with ALS, including parents, grandparents, siblings, and other family members. However, it was also created to support the many school-based and health care professionals who work with families affected by ALS. The goal of this guide is to help families start answering many of the questions that will be asked, as well as to offer support and suggestions for professionals assisting with families affected by ALS. A key theme throughout this guide is communication — how to do it, maintain it, and include it in everyday life.
Max Qty: 1
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Resource Guide 1: What is ALS? An Introductory Resource Guide for Living with ALS
$0.00This resource guide provides an overview of ALS, what it is, and how it affects your body. It provides information on what kind of resources are available to help you deal with ALS more effectively.
Max Qty: 1
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Guía de recursos 1: ¿Qué es la ELA? Una guía introductoria para quienes viven con ELA
$0.00Esta guía de recursos brinda una descripción general de la ELA, lo que es y cómo afecta su cuerpo. Brinda información sobre el tipo de recursos que tiene disponibles para ayudarle a lidiar con la ELA de manera más efectiva.
Max Qty: 1
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Resource Guide 2: After the ALS Diagnosis: Coping with the “New Normal”
$0.00This resource guide addresses the psychological, emotional, and social issues that you must face when your life is affected by ALS. It provides information on how to cope with the many lifestyle changes and adjustments that occur when you live with ALS.
Max Qty: 1
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Guía de recursos 2: Después del diagnóstico de ELA: Cómo lidiar con lo que ahora es normal para usted
$0.00Esta guía de recursos aborda los aspectos psicológicos, emocionales y sociales que deberá enfrentar cuando su vida se ve afectada por la ELA. Brinda información sobre cómo lidiar con los diferentes cambios en su estilo de vida y las modificaciones que deberá hacer al vivir con ELA.
Max Qty: 1
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Resource Guide 3: Changes in Thinking and Behavior in ALS
$0.00This resource guide addresses how thinking and behavior may be affected by ALS and how these changes can impact disease course, symptom management, and decision making.
Max Qty: 1
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Guía de recursos 3: Cambios en la forma de pensar y el comportamiento con la ELA
$0.00Esta guía de recursos aborda cómo el pensamiento y el comportamiento pueden verse afectados por la ELA y cómo esos cambios pueden modificar el curso de la enfermedad, el manejo de los síntomas y la toma de decisiones.
Max Qty: 1
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Resource Guide 4: Living with ALS: Planning and Making Decisions
$0.00This resource guide reviews areas where careful planning and decision making will be required and will provide you with resources to help you and your family plan for the future.
Max Qty: 1
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Guía de recursos 4: Vivir con ELA: Cómo planificar y tomar decisiones
$0.00Esta guía de recursos repasa áreas en las que se necesitará una cuidadosa planificación y toma de decisiones y le brindará recursos para ayudarles a usted y a su familia a planificar para el futuro.
Max Qty: 1
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Resource Guide 5: Understanding Insurance and Benefits When You Have ALS
$0.00This resource guide provides strategies and helpful hints to better navigate health insurance and benefits. While understanding insurance and benefits may feel overwhelming, the guidelines outlined here should help simplify the process for you.
Max Qty: 1
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Guía de recursos 5: Entienda el seguro y los beneficios si tiene ELA
$0.00Esta guía de recursos brinda estrategias y sugerencias útiles para que pueda analizar mejor su seguro y sus beneficios. Si bien comprender el seguro y los beneficios puede parecer abrumador, las pautas que se detallan en esta guía deberían servir para simplificarle el proceso.
Max Qty: 1
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Resource Guide 6: Managing Symptoms of ALS
$0.00This resource guide discusses a variety of symptoms that may affect you when you have ALS. As the disease progresses, various functions may become affected and it is helpful to understand potential changes so that you know what to expect and how to manage these new changes and symptoms.
Max Qty: 1
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Guía de recursos 6: Maneje los síntomas de la ELA
$0.00Esta guía de recursos cubre diferentes síntomas que pueden afectarlo si tiene ELA. A medida que la enfermedad avanza, diferentes funciones de su cuerpo se verán afectadas y es útil entender los posibles cambios para que pueda saber qué esperar y cómo manejar esos nuevos cambios y síntomas.
Max Qty: 1
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Real Kids Talk About ALS: Feeling Normal, Sad, and Different
$0.00Graphic novel for youth 7-12. Delivered in a graphic novel format, this book uses direct quotes from youth in the ALS research projects. These quotes help situate the learning style and experiences of children in ALS.
Max Qty: 1
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Resource Guide 7: Functioning When Mobility is Affected by ALS
$0.00This resource guide covers the range of mobility issues that occur with ALS. It discusses exercises to maximize your mobility, as well as how to adapt your home and activities of daily living to help you function more effectively.
Max Qty: 1
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School, Friends, Work, and ALS: A Young Adult Guide to Balancing Life with ALS
$0.00Older youth/young adult guide, 19-25. This book takes a more serious tone, again following several young adults as they manage their own lives with the care needed for their loved one with ALS, school and relationships. It is minimally illustrated and again uses actual stories and quotes.
Max Qty: 1
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The ALS Experience: It’s Different and Hard
$0.00Choose you own adventure guide, middle school youth 13-18. This book follows the stories of three youth, providing options for how they talked to people, who they talked to, and what was the outcome. The book allows other youth to choose who they might want to talk about ALS and their experiences. A companion online version has been developed.
Max Qty: 1
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Guía de recursos 7: Cómo funcionar cuando su movilidad se ve afectada por la ELA
$0.00Esta guía de recursos cubre la variedad de problemas de movilidad que se producen con la ELA. Trata sobre los ejercicios que puede hacer para maximizar su movilidad, cómo adaptar su casa y sus actividades de la vida diaria para que le ayuden a funcionar mejor.
Max Qty: 1
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Resource Guide 8: Adjusting to Swallowing Changes and Nutritional Management in ALS
$0.00This resource guide will help you understand how swallowing is affected by ALS and what you can do to maintain nutrition for energy and strength and to keep your airway open.
Max Qty: 1
Popular Items
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Resource Guide 11: Approaching End of Life in ALS
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Guía de recursos 8: Cómo adaptarse a los cambios en la deglución y el manejo de la nutrición si tiene ELA
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Resource Guide 1: What is ALS? An Introductory Resource Guide for Living with ALS
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Social Distancing Door Sign
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Medical Information Packet
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